The above pictures were taken yesterday post-op. On before extubation, one after extubation.
Short Version: Hard
night last night. Medically
speaking-Nolan is doing awesome-though he personally would disagree. Off oxygen, Foley tube & the arterial
line today.
Descriptive Version:
We had a challenging first night. I think Scott and I maybe got a total of one
hour sleep-and broken sleep at that. Our
plan of tag-teaming with one going to the trailer for awhile & the other
staying with Nolan backfired when Nolan requested we BOTH stay. And I'm sorry, we are both softies when it
comes to him right now and there was no way we'd not let him have his way after
the ordeal he went through. So we BOTH
stayed. The staff didn't mind that we
were there-they just were not set up to accommodate us in the room last night
because typically the first night-the parents don't stay. So we volleyed between sitting in plastic
folding chairs to standing by Nolan's bed.
Nolan had a difficult night.
The pain meds would wear off and he'd wake up in pain. At which point he
would usually say to us "I can't breathe" and he'd struggle with his
tubes etc. We would try to calm him down
while his night nurse would give him some more pain meds. He had one nurse assigned to him only all
night long. Nolan would basically follow
this pattern every hour to hour and a half.
Then it would obviously take some time to calm him down and put him to
sleep. Not much different than an infant
up all night needing food, only his food was pain meds. On a positive note-at different times during
the night when he would ask me for things he would say thank you, and
please-which kind of impressed me.
(Though they were few and far between-but hey-grabbing for straws here).
In the morning, they removed his nasal canula (took him off
oxygen). They also removed his Foley
catheter (the pee tube), and the arterial line in his left arm was just taken
out. Nolan has been cranky, sleepy and
uncomfortable most of the day today-no wonder the hospital staff said no
visitors. We could be in for another
long night. He just asked me "When do
we go to the trailer?" When I told
him not for a few days, he was very upset, attempted to take a swing at me and started
crying. Not much different than mom and
dad-except we held our crankiness at bay and so far haven't taken swings at
each other :) Seriously-I'm amazed how
well Scott and I are functioning today and with our patience level.
I'll update again tomorrow. I keep forgetting to grab the camera cord.
Rumor has it-one of the 2 chest tubes might be removed. God Bless!
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