I used the above verse in Nolan's book and we keep reiterating it along with several others to our little guy.
We are one week away from surgery day. Today after Nolan's pre-op cardiologist appointment, the four of us took a tour of the hospital. Sara-the child-life specialist was wonderful with Nolan and he warmed up to her right away. She had a story to share with Nolan on her i-pad, and then Nolan showed her the book that we had made for him. She even read it to both kids and then Nolan showed her his "special stone".
During the tour, Nolan seemed to take things in stride. We visited the Lobby where we'll check-in, the area where he'd change in to his "hospital pajamas" and wait before the surgery, the room where Nolan would recover and finally the playroom (best part).
He was able to meet a few of the nurses on staff and even had the surgeon-Dr. Nasirov wave to us (as he was on a phone call). When Sara asked Nolan if he was doing ok with having surgery next week, Nolan gave a nonchalant response to the effect of, "yeah-it's ok".
Of course away from Sara, in the parking lot walking to the car, he changed his tune and told me, "but I'm not going".
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As of now, Nolan is scheduled for surgery at 8:30am on Thursday-August 16th. We will be headed down to the hospital on Wednesday morning with the trailer and for some pre-op lab work and chest x-rays. After surgery, Nolan will be recovering in the pediatric intensive care unit. Today we learned that Sutter has a ward designated specifically for pediatric cardiac patients. In this ward, the children have their own private room :) We were also told, that unless the hospital gets full and needs to move beds around, Nolan will remain in the same room until he leaves the hospital.
Visitors other than immediate family members will be allowed after a few days of recovery. The first 24-48 hours, the staff has requested that we limit the number of visitors in Nolan's room. You are welcome to visit us, but please don't be offended if you can't see Nolan right away. Scott and I will likely play tag with our time with Nolan, as we rest and refresh ourselves in the trailer in the hospital parking lot.
I plan to update the blog daily (probably in the mornings/or evenings) during our stay. I'll try to send updates-but if for some reason I forget-just go directly to the blog to see if I've updated. I'll plan to title the blogs with the current date of the blog so it will be easy to see if you've already read that update :)
2 comments:
It sounds like the Sutter Hospital tour was perfect --- even if Nolan made his parking lot comment afterwards. I'm sure he will come out in flying colors after his surgery. He is our little super hero who has special powers and LOTS of love & support from family, friends & God. We'll be thinking of all of you on the 16th, as we'll be driving up to Washington that morning. Thanks for keeping us updated on everything. Give Nolan & Leah a big hug for us!!!
So glad the tour went well and Nolan was brave! You know you will have our continual prayers. Perhaps you will have to write another book about super hero Nolan with his improved heart after this is all done. :)
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