Where has the time gone?

Yikes!  5 months since my last blog!  I'm sorry for the time delay.  I have no excuses except we've been too busy living life! 

Not too much to post, so I'll just add a few photos from that time period of "living life" along with captions from some of the selected photos.  Obviously there are "long stories" to go with the photos, but...they say a picture is worth a 1000 words right?

Also-please note that this will be my FINAL post for this blog.  I'll be combining our "personal" blog with the "school blog": http://schooldazeofoakvalleyacademy.blogspot.com/ and that will be the "NEW" blog to check out if you choose to keep up with what's going on in our lives.  I'll be updating that blog as well-so make sure to check it out.  If you are currently following this blog-make sure to "follow" the above blog for future updates.  Thanks everyone.


Leah's 8th birthday!  She LOVES horses now-so Mema's cake was "horse" themed.

One of my favorite photos from Christmas...
What our family spent doing on New Year's Day.  We were at Uncle Russ's house!  I think New Year's in Pollock Pines is becoming our new tradition.


Scott and the kids planned a 40th Birthday party for me with a few friends and family.
Scott, my sister & brother-in-law surprised me with a trip to Chicago!  I was able to celebrate with my sister being alive 40 years!  And as a bonus-I got too see the her new home!

Nolan and Dad helped out at the annual "Boot-Drive" for the Rescue firehouse.  The event raises money for the burn unit.  They received more money this year than any other year.  Could it have been because of the "little" firefighter?

My cowboy & cowgirl Leah was in "hog-heaven" visiting our friend Kendall and getting to ride one of her horses-Red.


Yes...that is Leah riding a horse-by HERSELF!

Nolan and his "fresh squeezed" orange juice stand.  He also was selling rocks and various other articles.

Leah had a lemonade stand and also sold rocks and various articles.  You can't see it-but she wrote out a name for her stand "Base Goods"

Dad & Uncle Russ have been teaching the kids archery.  They are loving it!


They dyed Easter Eggs with Mema this year-but both kids agreed they missed doing it with their cousins.  Perhaps Mia, Sophie & Grant can come next year.


They did enjoy their other cousins on Easter though-Marcus & Grace.

2012 is drawing to a close...

First off, I want to thank everyone that voted for my video in the Transplant Living contest!  Thanks for taking the time each day to vote for me & share the video with your friends.  You are all awesome!  I'll keep you posted on the results.

I've thrown in a  photo of my "super heros" as I promised from Halloween.

 
In early November, Scott had a training in South Lake Tahoe.  We went up a few days early to enjoy some vactation time with the kids.  My folks joined us for a couple nights before taking the kids home with them for a few days while I helped Scott with his training.  Here are a few photos from that Tahoe trip.
 
Scott taking some well deserved time off



Leah shocked to see Dad just sitting!

In a few short weeks Leah will be turning 8 years old!  I can hardly believe she's well on her way to being a young lady.  She's been learning to ride her bike for awhile, but lost confidence after taking a tumble early this summer.  We finally got her back on her "old bike" and she took off and loved it.  It became one of her favorite activities to do next to art.  We promised her a new bike once she had mastered the old one-and it only took her 6 weeks.  So as an early birthday gift, we took her shopping for her new bicycle.  This bike has gears and brakes on the handle bars, in addition to sitting a little taller than her old bike, so there is a learning curve with it.  She is doing great though and so excited!

There she goes



 Soon after this purchase we left on another trip.  We had a last minute change of plans for Thanksgiving and decided to travel down to San Diego to spend it with my little brother and his fiancee.  My folks were already going to be there.  The trip worked out well with one of Scott's projects, in addition to a training that he had the Monday after Thanksgiving.  So we took off on Monday before Thanksgiving and headed down Scott's project along Hwy 395.  We had a lovely time visiting family in San Diego and Huntington Beach (on our way home).  Below are some photos from the trip.
 
On the Job!


Thanksgiving Spread


Dakota wearing the kids out (or the kids wearing Dakota out?)




Tug of war
Leah lost






 
We chose our Christmas Tree on the way home for our 11 day trip and will be decorating the house for Christmas soon.  If I don't get a chance to jump on the blog again, our family wishes you all a VERY MERRY CHRISTMAS!

Back to the grind...

Well, we passed the 6 week mark & are now 8+ weeks post surgery for Nolan and all is REALLY well.

We've squeezed in alot of things in the last 8 weeks since surgery and here there are in brief summary:

1)  Visit from my sister & family from Chicago in late August.
2)  Oak Valley Academy started back to school after Labor Day.  Kindergarten for Nolan, 2nd grade for Leah.
3)  An early birthday celebration for Nolan's 5th birthday with family.  Very low-key.
4)  A quick trip for me to Chicago to see Madonna in concert with my sister in late Sept.
5)  A trip to Oregon to go crabbing with family and celebrate 12 years of wedded bliss :)
6)  A belated 5th birthday party for Nolan with all his "boys"-so he could go crazy, play and have fun like a 5 year old boy should do!

There are a few photo highlights from the above items to your right.  Sorry this is short & sweet.  I've lesson plans to finish and countless loads of laundry still from camping! 

Stay tuned for Halloween pictures of a couple of you favorite super heroes!!

August 23, 2012-We are Home!

"Because he loves me," says the Lord, "I will rescue him; I will protect him, for he acknowledges my name.  He will call upon me, and I will answer him; I will be with him in trouble, I will deliver him and honor him.  With long life will I satisfy him and show him my salvation."  Psalm 91:14-16
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Today marks 1 week from the day we trudged our reluctant soon-to-be-Kindergartner , not to school, but to a hospital...to endure the open-heart surgery- that even up to being wheeled through the OR doors, he denied participation in!
Now here we are, settling back into the daily routines of home life.  Our biggest challenge now is trying to keep a 4-year old boy from doing 4-year old boy stuff.  And even simple stuff, like how he puts on a shirt, how he climbs into chairs and the car, how he plays with his cars :)
But we're managing and he's slowly adjusting.  I'll be completing his "count-down" calendar today to when he can start resuming his "normal" activities such as taking a bath, climbing into his bunk bed, etc.
I've added some pictures from our last 2 days in the hospital.  Thanks to all of our family and friends for the prayers, well-wishes, visits, cards, e-mails, offers of help, the outpouring of love & encouragement.  We are truly a richly blessed family.










 
 
 

August 20, 2012-Homeward Bound!

Short Version:  Praise the Lord-We are going Home!

Detailed version: For the record-I'm writing the detailed version to have a record for Nolan when he gets older.  I've enjoyed reading my mom's detailed, handwritten versions of some of my hospital excursions and wanted to leave that legacy for Nolan if he so desired.
This experience here in the hospital with Nolan has been amazing!  Simply Amazing! 
Amazing that from 8:30 am to 8:30 pm Sunday, Nolan had NO pain meds-or more importantly, didn't need them.
Amazing that last night before bed, all he had was "regular" children's Tylenol (as opposed to Tylenol with Codeine) and he slept all night with just a bit of stirring and dreaming.
Amazing that he was walking around the hospital yesterday to go to the play room and wasn't tethered to any IV or machines.
Amazing that after 4 days post-op we are going home!
So I didn't go into any detail regarding Saturday's events.  Saturday was a huge day for us with the pulling of the chest tubes, removing the central line and starting on bland solid food Saturday evening.  Nolan had two chest tubes placed inside of him to drain excess fluid from around the lungs.  These tubes drained into two chambers at the end of his bed and each shift nurse could measure the amount of fluid being drained from either Nolan's left or right side.
So a little before 9am, Dr. Nasirov's assistant-Nichole came to tell us they would be removing both chest tubes!  We had been under the impression that it would probably only be one.  (We later learned that our nurse Karen discussed with her to either remove both or none because Nolan has some anxiety when it comes to removing IV's, medical tape etc.  So I guess after checking the chest x-rays and with both lungs clear-it was decided both could be removed).  A little bit before, they gave Nolan some pain meds .  A child life specialist came up to help distract Nolan (it didn't help-by then he was on to us).  We did our best to distract him as Nichole removed the bandages (Nolan is very sensitive to the tape removal) then the stitches from on tube.  Because Nolan was a bit "worked up", we had to take a few practice deep breaths.  Then Nichole pulled on tube out.  It was inside Nolan about six inches. She started working on the other one.  When she went to pull that tube out, it kept coming...and coming....and she paused at one point & then pulled and it "popped" out splattering blood on her dress, the blankets, some of child life's toys....it was actually amusing and Nolan loves to tell the story of the "blood squirting everywhere".  That tube was inside Nolan at least 12 inches!
The removal of the central line in the neck was not as exciting-but Nolan did have issues when the tape was coming off.  It seems to be all about the tape. 
Uncle Russ came to visit Saturday evening.  He had dinner with us and even stayed the night in the trailer.
Saturday night Nolan slept better-which helped Mom and Dad sleep better too (for the most part).  Around 5:30am, I was in the chair and noticed Nolan tugging on the tape for his pulse ox and then he pulled the whole thing off.  He was still asleep, but the alarm sounded and I got up to put it back on his finger before his nurse came in to see what the problem was.  After I had it reattached and the monitor registered that it was working, I noticed the tape on his other hand was flopping around and then noticed that his IV was out of his hand.  About this time Scott had woken up, so he went to get the nurse and we just took the IV off.  So now Nolan was down to just one IV-heplock in his right hand. 
Uncle Russ returned Sunday morning and stayed until Grammy and Aunt Susan came with Leah.  The smile on Nolan's face when he saw Leah was priceless!  I'm sorry I didn't have my camera ready.   Nolan walked with Leah to the playroom and they did a craft there, then when we returned to our room, some new visitors had arrived.  Grandma GG, Mema and Grandpa were here.  We all visited in Nolan's room for a bit and then it was tie for our visitors to leave and get some rest. 
Grammy and Aunt Susan came back to visit around 4:15.  Scott and I were able to sneak down to the trailer while Susan and Grammy entertained Nolan.  We picked up the trailer, made dinner and just took a break from "hospital stuff" for a little over an hour.  When we returned, Nolan's dinner had been served so we all had dinner together, visiting a little longer and then Aunt Susan and Grammy went to the trailer to stay the night.  Nolan seemed comfortable and wasn't complaining of any pain, so Scott I discussed what meds to give Nolan that night with his nurse.  His last dose of pain meds had been at 8:30 that morning.  We decided to try just regular Tylenol.  Nolan fell asleep by 9:00 and slept until sometime after 6:00 am.  He didn't wake up, just wriggled a bit and talked in his sleep.  At one point this morning he said in his sleep, "I did it!"  I'd like to think he was talking about his heart surgery :)
Ok.  Time to shut down the computer & get packing.  Thank you all for your thoughts, prayers, and messages.  I'll post photos later once I get them up on the computer.
 


August 18, 2012

"Trust in the Lord, with all your heart, and lean not on your own understanding.  In all your ways, acknowledge Him, and He will make your paths straight."  Proverbs 3:5-8


Last night was a little better.  Scott and I took 2 hour shifts.  We both stayed in the room with Nolan.  He doesn't want to have us away from him.  So I would rest in the pull-out chair bed for 2 hours, while Scott sat up with Nolan and then we'd switch off.  Nolan also did better last night.  We tried to time his 2 pain meds, so they wouldn't wear off completely before the next dose of the next medicine was available to administer.  Our main goal last night was to keep Nolan as comfortable as possible.  Hard to do when you have a tube stuck in your neck, one in each hand, and 2 in your chest cavity.  Not to mention the sheer aches & pains from having your chest pulled open.  Lucky for Nolan, Scott and I can truly empathize and relate.
Once again-medically speaking he is doing excellent, Praise our Lord. This morning around 9:30, both chest tubes were removed! For those with any knowledge of surgery this is a HUGE deal. It's a giant leap toward home. I am personally amazed that we are on day 2 and they were both removed! The last surgery they waited 4 days. The plan is to also remove the central line in the neck later today. That will leave just the two IV ports in his hands.



 
Our goal today will be to get Nolan drinking more and starting on bland solid foods.  If he can keep those down, then we'll know he'll be able to tolerate oral pain meds.
We've not seen the surgeon today, but Nolan's cardiologist stopped by to check on Nolan.  All is well :)  Happy Saturday!

August 17, 2012




The above pictures were taken yesterday post-op.  On before extubation, one after extubation.

Short Version:  Hard night last night.  Medically speaking-Nolan is doing awesome-though he personally would disagree.  Off oxygen, Foley tube & the arterial line today.

Descriptive Version:
We had a challenging first night.  I think Scott and I maybe got a total of one hour sleep-and broken sleep at that.  Our plan of tag-teaming with one going to the trailer for awhile & the other staying with Nolan backfired when Nolan requested we BOTH stay.  And I'm sorry, we are both softies when it comes to him right now and there was no way we'd not let him have his way after the ordeal he went through.  So we BOTH stayed.  The staff didn't mind that we were there-they just were not set up to accommodate us in the room last night because typically the first night-the parents don't stay.  So we volleyed between sitting in plastic folding chairs to standing by Nolan's bed.
Nolan had a difficult night.  The pain meds would wear off and he'd wake up in pain. At which point he would usually say to us "I can't breathe" and he'd struggle with his tubes etc.  We would try to calm him down while his night nurse would give him some more pain meds.  He had one nurse assigned to him only all night long.  Nolan would basically follow this pattern every hour to hour and a half.  Then it would obviously take some time to calm him down and put him to sleep.  Not much different than an infant up all night needing food, only his food was pain meds.  On a positive note-at different times during the night when he would ask me for things he would say thank you, and please-which kind of impressed me.  (Though they were few and far between-but hey-grabbing for straws here).

In the morning, they removed his nasal canula (took him off oxygen).  They also removed his Foley catheter (the pee tube), and the arterial line in his left arm was just taken out.    Nolan has been cranky, sleepy and uncomfortable most of the day today-no wonder the hospital staff said no visitors.  We could be in for another long night.  He just asked me "When do we go to the trailer?"   When I told him not for a few days, he was very upset, attempted to take a swing at me and started crying.  Not much different than mom and dad-except we held our crankiness at bay and so far haven't taken swings at each other :)  Seriously-I'm amazed how well Scott and I are functioning today and with our patience level. 




I'll update again tomorrow.  I keep forgetting to grab the camera cord.  Rumor has it-one of the 2 chest tubes might be removed.  God Bless!